Supporting Caregivers and collaborating with healthcare professionals

Caring for a person with Dementia can be deeply rewarding, but it also comes with emotional and physical challenges. Cargivers often put their loved ones’ needs above their own, which can lead to burnout.

The National Institute of Mental Health and Neurosciences (NIMHANS) has created short films featuring real-life stories of caregivers and experts. These highlight the early signs, diagnosis, and Dementia care strategies. Watching these videos can provide valuable insights into managing dementia with compassion and expertise.

At the same time, collaborating with healthcare professionals is essential for providing the best possible care. Here’s how carers can support themselves while working effectively with doctors and hospitals.

The Importance of Self-Care for Caregivers

Caring for a person with Dementia is a long-term commitment that requires patience, resilience, and emotional strength. However, neglecting self-care can result in burnout, stress, and declining health. Prioritising self-care benefits both the carer and the person they are supporting.

Self-Care Strategies for Caregivers:

• Acknowledge Your Emotions: It’s normal to feel overwhelmed, frustrated, or even guilty. Allow yourself to process these emotions without judgment.
• Take Breaks Without Guilt: Short breaks, even just for a cup of tea or a walk, can help reset your energy levels. Respite care or support from family members can provide much-needed relief.
• Stay Connected with Loved Ones: Caregiving can feel isolating, but reaching out to friends, family, or support groups can provide emotional strength and practical advice.
• Prioritise Your Health: Ensure you eat nutritious meals, stay active, and get enough sleep to maintain your well-being.
• Practice Mindfulness and Stress Management: Activities like meditation, journaling, or even deep breathing exercises can help manage daily stress.
• Engage in Activities You Enjoy: Hobbies, reading, or listening to music can provide moments of joy and relaxation.
• Set Boundaries: It’s okay to say no or delegate tasks to others when you need to.
• Seek Professional Help When Needed: Speaking with a therapist or joining a caregiver support group can provide valuable coping mechanisms.
• Know That You Are Doing Enough: Feelings of guilt are common, but remind yourself that your love and care make a significant difference.

Watch this video for more self-care strategies:

Working with Doctors & Preparing for Hospital Visits

Medical appointments and hospital visits can be overwhelming for both the person with Dementia and their carer. Effective communication with doctors ensures the right care decisions are made, while proper preparation reduces stress.

Communicating with Healthcare Professionals

• Prepare in Advance: Keep a record of symptoms, medications, and any behavioural changes to discuss with the doctor.
• Ask Questions and Clarify Doubts: Understand treatment options, potential side effects, and long-term care recommendations.
• Advocate for the Person with Dementia: Speak up about their needs, preferences, and any concerns to ensure personalised and compassionate care.
• Take Notes During Appointments: Writing down key points from consultations helps ensure you follow through with medical advice.
• Build a Relationship with Healthcare Providers: Establishing open and ongoing communication with doctors, nurses, and therapists fosters better collaboration.
• Understand Your Rights: Knowing the rights of carers and the person with Dementia ensures access to proper care and support.

Preparing for Hospital Visits

• Pack Essentials: Bring necessary medications, identification, medical records, and comfort items like familiar blankets or photos.
• Inform Hospital Staff About Dementia Needs: Clearly explain the person’s condition, communication challenges, and any special requirements to ensure they receive appropriate care.
• Reduce Confusion and Anxiety: Hospital environments can be overwhelming. Bring familiar objects, maintain a calm tone, and offer reassurance to keep them at ease.
• Request Dementia-Friendly Care: Ask for quiet rooms, continuity in staff, or flexible visiting hours to provide a more supportive experience.
• Stay With Them When Possible: If allowed, being present during their stay can provide comfort and advocacy.
• Ensure Clear Communication During Discharge: Before leaving, discuss post-hospital care, medications, and follow-up appointments. Ensure discharge instructions are in clear, simple language that can be easily followed at home.
• Arrange for Extra Support: Hospital visits can be physically and emotionally draining, so seeking help from family or community services can make the transition easier.

Final Thoughts

Caring for a person with Dementia requires both compassion and collaboration. By prioritising self-care, supporting caregivers can maintain their well-being while providing the best support possible. At the same time, working closely with healthcare professionals ensures that medical needs are met efficiently and with empathy.

Remember, you are not alone in this journey—seek support, stay informed, and take care of yourself along the way.

Frequently Asked Questions